Announcements
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“Urgent need for pain control in HIV/AIDS
Recognition of the need for pain control and palliative care in patients with HIV/AIDS is emerging, according to two recent issues of Cancer Pain Release, the publication of the WHO Pain and Palliative Care Communication Program.
In the first issue, Professor Peter Selwyn, Director of the Palliative Care Program at Montefiore Medical Center and Chair of the Department of Family Medicine at the Albert Einstein College of Medicine, explains the importance of developing the knowledge and skills to deliver effective pain control and palliative care together with antiretroviral therapy to provide the best quality of life for adult patients with HIV/AIDS. The challenge of providing pain control is discussed in light of an HIV epidemic characterized by a high incidence of symptoms, a large population of patients with limited resources, and a significant percentage of patients with a history of substance abuse.
In the second issue, Professor James Oleske, a leading US expert in the medical management of HIV-infected children, discusses how palliative care supports the effectiveness of antiretroviral therapy by controlling painful symptoms, addressing toxicity and the side effects of therapy and improving quality of life. The publication provides resources for symptom control in pediatric HIV/AIDS from WHO and other sources relevant to countries with limited resources, as well as abstracts of current research on HIV-related pain and palliative care in children.
To read these two publications online, visit:
www.WHOcancerpain.wisc.edu/eng/19_4/19_4.html
[pain in adults with HIV/AIDS]
and
www.WHOcancerpain.wisc.edu/eng/20_1-2/20_1-2.html
[pain in children with HIV/AIDS]
To subscribe and receive print copies, visit:
http://www.whocancerpain.wisc.edu/subscribe.html“
Provided by and re-printed here with permission of:
Sophie M. Colleau, PhD
WHO Collaborating Center for Policy & Communications in Cancer Care
University of Wisconsin School of Medicine and Public Health
Paul P. Carbone Comprehensive Cancer Center
406 Science Drive, Suite 202
Madison, WI 53711, USA
Tel: 1-608-263-0727
Fax: 1-608-263-0259
Website: http://www.WHOcancerpain.wisc.edu
From the EAPC
“Dear EAPC members and colleagues ,
We are writing to inform you that the EAPC Taskforce - Palliative Care in Children, established at the end of 2006, has recently published a paper outlining standards of care for children with life-limiting and life threatening illness. This paper is the first in a series of works planned by the Taskforce that we hope may become a pivot for the development and improvement of palliative care services for children and may contribute to bringing about the changes in the care of children that are much needed in all European countries.
The Document is entitled IMPACCT - Standards for paediatric palliative care in Europe, it was published in the European Journal of Palliative Care vol. 14 no 3 and is currently available in English through the EAPC website (http://www.eapcnet.org/projects/Paedriatic.asp). We would like to give this document as much visibility as possible and are keen that it reaches as wide a field as possible. We have obtained the rights from the EJPC publishers, Hayward, to reproduce the translated article and are looking to publish the translation in international palliative care sector journals throughout Europe.
We would be very grateful for any assistance and support from national and regional organizations and associations in the translation and dissemination of this document. If you would like more information regarding the publication or translation or just more information regarding the Taskforce, please contact the Taskforce Secretary at [email protected] (tel + 39 06 3290609, fax +39 06 363 06482)
Thank you for your attention,
Franca Benini and Huda Abu Saad Huijer
Co-Chairs EAPC Taskforce ? Palliative Care in Children”
Also from the EAPC
“The EAPC Atlas of Palliative Care in Europe
(Book and CD-book)
The European Association of Palliative Care (EAPC) launched the first "Atlas of Palliative Care in Europe" during the International Congress held in Budapest, 7-9 June 2007.
The study has succeeded in compiling country reports for 42/52 participating countries which results are presented in The Atlas in a very attractive way with tables and maps. A special EAPC Task Force have worked in the last four years in the project and its main results, the Atlas, is representing the largest palliative care research collaboration of its kind, carried out an assessment of palliative care development taking into account political, social and health care policy.
The resulting Atlas brings together country reports with comparative data on the status of palliative care development in 52 countries and a total population of 879 million people including: Palliative care resources, paediatric palliative care, estimate of palliative care beds, certification of palliative care as a specialist area, workforce capacity, legislative issues and the milestones of the development of Palliative Care in each particular country.
There are two versions available of the Atlas: Atlas-book (336 color printed pages) and Atlas CD-book (45 color printed pages and CD). Please find attached the order form.
Dr Carlos Centeno, who led the project, commented: “the ATLAS reveals that Europe faces severe gaps in palliative care service provision. This research has confirmed that palliative care provision does not meet the needs of the population of Europe. For the first time ever there is one source of information on all palliative care resources and we hope our colleagues will use this comparative study to promote palliative care and advance policy making to ensure adequate provision support to terminally ill people across Europe”.
The publication of the EAPC Atlas of Palliative Care in Europe is the first stage in a longer term research project aiming to further research, document and disseminate information on the development of Palliative Care in Europe to 2009. This project will map the provision of specific services, legislation on death, pediatric palliative care, health insurance, epidemic data, sources of funding, use and estimated cost of opioids, research projects, university teaching, professional accreditation and health policy and palliative care.
The EAPC Task Force on the Development of Palliative Care in Europe is a partnership between EAPC, the International Observatory on End of Life Care, Help the Hospices, the International Association for Hospice and Palliative Care and the University of Navarra.
Reference:
Centeno C, Clark D, Lynch T, Rocafort J, Greenwood A, Flores LA, De Lima L, Giordano A, Brasch S, Praill D. EAPC ATLAS OF PALLIATIVE CARE IN EUROPE. IAHPCPress, Houston, 2007.
Go to the main page of the EAPC Task Force on the Development of Palliative Care in Europe”
The National Hospice and Palliative Care Organization (USA) has announced the publication of an original article titled:
Hospice Care for Patients with Dementia
Read the full paper in the Journal of Pain and Symptom Management; 2007 Vol. 34 (1), 7-16 by clicking below.
http://www.nhpco.org/files/public/JPSM/jul07article.pdf
Let’s write about palliative care for the CDC!
“Write a story for INSIGHT - News & Views from CDC's Division of Cancer Prevention and Control!
If you are interested in submitting a story to be included in a future issue of INSIGHT, please make sure that your submission is 300 words or less. Any draft copy submitted to INSIGHT will be edited for style, grammar, and clarity of content. Examples of submissions include cancer program success stories, interviews, partner profiles, or event snapshots. Inclusion of stories in INSIGHT is based on availability of space, timeliness, and receipt by the stated deadline. We look forward to reviewing your submissions!
Please note that the copy deadline for the Fall 2007 issue of INSIGHT is August 31, 2007.”
From the American Academy of Hospice and Palliative Medicine
“American Academy of Hospice and Palliative Medicine Names New CEO
Glenview, IL– The American Academy of Hospice and Palliative Medicine (AAHPM) announces the appointment of Steve R. Smith, MS CAE as Chief Executive Officer. The Academy is the professional organization for physicians who specialize in the care of people living with serious illness, the dying, and their families.
Smith comes to the Academy with a wealth of experience in the management of healthcare associations, most recently at the American Academy of Physical Medicine and Rehabilitation as Senior Director, Business Development, Marketing and Membership Services. Prior to that, he worked for eight years at the national office of the Alzheimer’s Association in Chicago.
“As hospice and palliative medicine was formally recognized as a subspecialty of medicine last year, we are at a critical juncture in our history,” states AAHPM President J. Cameron Muir, MD. “With Steve’s experience in managing medical societies, we are confident that the Academy will continue to move forward with transformative growth to meet the urgent need for expanded medical expertise in hospice and palliative medicine.” Since 1988, AAPHM has been the leading source of information, knowledge sharing, and professional development for physicians in hospice and palliative medicine.
According to Smith, “This is an exciting and important time for the Academy and I believe the opportunities are endless. With the Board’s strategic focus and the dedication of the Academy staff, we will successfully advance AAHPM’s mission and goals through the ever-changing and expanding health care environment.”
Smith will officially assume his position with AAHPM on August 15, 2007.”
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