International Association for Hospice & Palliative Care

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Pain and Palliative Care
Assessment and Research Tools

We have compiled the following list of assessment and research pain and palliative care tools available for free as a service to the palliative care community worldwide

If you know of a tool not listed here,
please click here to send the information and URL.

A - C  D - F  G - K  L - O  P - S  T - Z

Adobe Acrobat Reader The Free Acrobat .pdf reader may be downloaded for all windows operating systems & mac operating systems, linux, OS/2 Warp, pocket pc, palm pilots and in many languages.

A - C

Achieving Balance in National Opioids Control Policy:
Guidelines for Assessment  (
Available in 14 languages)

After-Death Bereaved Family Interview
http://www.chcr.brown.edu/pcoc/toolkit.htm

Brief Fatigue Inventory
http://www.mdanderson.org/pdf/bfi.pdf

Brief Pain Inventory (long form)
http://www.mdanderson.org/pdf/bpilong.pdf

Brief Pain Inventory (short form)
http://www.mdanderson.org/pdf/bpisf.pdf

CAGE Questionnaire
http://www.mdanderson.org/pdf/cage.pdf

Caregiver Burden Scale
http://www.ku.edu/~kugeron/program/Appendix.pdf

Caregiver Strain Questionnaire
Click Here

Clinical Calculators - Calculators from A-a Gradient Calculator, Body Mass Index (BMI), Creatinine clearance (Adult), Digoxin Dosing, Drip Rate Table Creator, Fentanyl Patch Converter, Narcotic analgesic converter, Steroid Converter, Temperature Converter Celsius-Fahrenheit to Warfarin Therapy and many more!
http://www.globalrph.com/calculators.htm

D - F

Edmonton Functional Assessment Tool (EFAT)
http://www.palliative.org/PC/ClinicalInfo/AssessmentTools/Efat.pdf

ECOG Performance Status
http://www.ecog.org/general/perf_stat.html

Edmonton Symptom Assessment System (ESAS)
http://www.palliative.org/PC/ClinicalInfo/AssessmentTools/esas.pdf

Edmonton Staging System
http://www.mdanderson.org Click Here

End of Life Care and Outcomes - US Agency for Healthcare Research and Quality
http://www.ahrq.gov/downloads/pub/evidence/pdf/eolcare/eolcare.pdf 
6.1 MB (LARGE FILE)

End of Life Chart Review - Administrative Information
http://www.gwu.edu/~cicd/toolkit/toolcharts.htm

Epidemiological Methods in Studies of Symptoms in Advanced Disease
http://symptomresearch.nih.gov/chapter_19/index.htm

Epidemiology of Dying and End-of-Life Care (EDELE) (USA based data)
www.edeledata.org

Fair Tests of Treatments in Health Care
Click Here

FAMCARE Scale
http://www.promotingexcellence.org/downloads/measures/famcare.pdf

FAST - Stages of Alzheimer's disease
http://ec-online.net/Knowledge/articles/alzstages.html

G - K

Geriatric Depression Scale (In several languages)
http://www.stanford.edu/~yesavage/GDS.html

Grief Resolution Index
Click Here

Hamilton Depression Rating Scale
http://www.members.optusnet.com.au/bill54/depresstest.htm

Herth Hope Index
http://www.promotingexcellence.org/downloads/measures/herth_hope_index.pdf

Karnofsky Performance Scale
http://www.acsu.buffalo.edu/~drstall/karnofsky.html

L - O

MD Anderson Symptom Assessment System
http://www.mdanderson.org/pdf/symptomassessment.pdf

McGill Quality of Life Questionnaire
http://www.promotingexcellence.org/downloads/measures/mcgill_qol.pdf

McGill Pain Questionnaire (Melzack 1975) pdf

McGill Pain Questionnaire (Short-Form)  (Melzack 1987) pdf

Missoula Demonstration Project Community Survey
Click Here

Memorial Symptom Assessment Scale
Click Here     Scoring: Click Here

Mini Mental State Questionnaire
Click Here

Monitoring Financial Flows for Health Research: The changing landscape of health research for development Global Forum for Health Research, 2006.
Click Here

P - S

Palliative Outcomes Scale
http://www2.edc.org/lastacts/archives/archivesJan00/POSReg.asp

Palliative Performance Scale version 2 (PPSv2)
http://www.palliative.org/PC/ClinicalInfo/AssessmentTools/PPS.pdf

Partnership for Caring Advanced Directive Check List
http://www.partnershipforcaring.org/ToolKits/adchecklist.html

Pediatric Pain Profile
http://www.ppprofile.org.uk/

Professionals Available to Spend Time Abroad
http://www.hospicecare.com/Directories/people.htm

Quality of Care Check List
http://www.partnershipforcaring.org/ToolKits/qualitycarechecklist.html

T - Z

The BIAS FREE Framework: A practical tool for identifying and eliminating social biases in health research Mary Anne Burke and Margrit Eichler.
Global Forum for Health Research, Geneva, Switzerland, 2006
To access the document, click here

The Conduct of Systematic Research in Science
Click Here

Toolkit of Instruments to Measure End of Life Care - Patient Interview
http://www.gwu.edu/~cicd/toolkit/tool3.htm

Toolkit of Instruments to Measure End of Life Care - Surrogate After death Interview
http://www.gwu.edu/~cicd/toolkit/tool2.htm

Wong-Baker FACES Pain Rating Scale
http://www3.us.elsevierhealth.com/WOW/graphics/wong_faces.gif

 

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