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International Association for Hospice & Palliative Care
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Promoting Hospice & Palliative Care Worldwide |
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International Association for Hospice & Palliative Care
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Promoting Hospice & Palliative Care Worldwide |
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The management of patients with amyotrophic lateral sclerosis (ALS), and their families, provides many challenges for those who work in palliative care. This book brings together information on all aspects of that care—psychosocial as well as physical. The need for a multidisciplinary approach and the roles of different members of the team are clearly outlined. The chapter on end of life care will be particularly useful for inpatient palliative care services that may first see ALS patients when they are already terminally ill. Roger Woodruff Author Information David Oliver is Consultant Physician in Palliative Medicine, Wisdom Hospice, Rochester, UK Gian Domenico Borasio is from the Department of Neurology and Interdisciplinary Palliative Care Unit, Ludwig-Maximilians, University, Munich, Germany Declan Walsh is Director of the Harry R. Hornitz Centre for Palliative Medicine, Cleveland Clinic Taussig Cancer Centre, Cleveland, USA Table of Contents 1. Amyotrophic Lateral Sclerosis - motor neurone disease: Clinical neurology and neurobiology 1 Shaw 2. Palliative care 21 Oliver 3. Breaking the news 29 Borasio, Sloan, Pongratz Appendix: Advance directives 21 Borasio, Voltz 4. The control of symptoms 4.1 Dyspnoea 43 Lyall, Moxham, Leigh 4.2 Dysphagia 62 Wagner-Sontag, Allison, Oliver, Prosiegel, Rawlings, Scott 4.3 The control of other symptoms 72 Borasio, Oliver 5. Psychosocial Care 93 Gallagher, Monroe 6. Multidisciplinary Care 6.1 Physiotherapy O’Gorman 6.2 Occupational therapy 111 Kingsnorth 6.3 Speech and language therapy 117 Scott, Foulsom 6.4 The role of a Clinical Psychologist in the ALS team 126 Kerkvliet 6.5 Rehabilitation 135 Molloy 7. Models of Care 143 8. End of life care in ALS 159 Sykes 9. Bereavement 169 McMurray 10. Personal experiences 183 11. The future 191 Oliver Index 199 |
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