A HOUSE CALLED HELEN: The Development of Hospice Care for Children
Jacqueline Worswick
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Oxford University Press, 2000
ISBN 0-19-263235-3
268pp
RRP £13.95, $US14.95
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This book tells the story of the first hospice for children, which opened in Oxford in 1982. It starts with the tragic illness of Helen Worswick, which serves to illustrate why paediatric hospices
are so necessary if we are to meet the needs of both the patients and their families. The description of the operation of the hospice over its first ten years further underlines the role of paediatric
hospices in meeting these needs. This second edition has an additional chapter, “Into the New Millennium”, which describes the continuing development of paediatric palliative care.
Will be of interest to anyone involved in paediatric palliative care.
Roger Woodruff,
Director of Palliative Care, Austin Health, Melbourne, Australia
August 2004
Table of Contents
Introduction
Helen's illness
Home from hospital
Frances and Helen
Planning the hospice
The vision becomes reality
After the opening
The philosophy at work
Reflections on years of caring
Conclusion
Into the new millennium