HOSPICE CARE FOR CHILDREN Second Edition
Ann Armstrong-Dailey and Sarah Sawbuck (Eds)
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Oxford University Press, 2001
416 pp
ISBN 0-19-513330-7
RRP $US32.50, £17.99
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This is a comprehensive treatise on all aspects of pediatric palliative care. The first section deals with clinical management issues, including children’s age-related understanding of death,
pain and symptom management, psychological issues, and the management of children with HIV/AIDS
The second part is about the psychological and spiritual problems experienced by families during a child’s terminal illness and in bereavement. There is also a chapter on support for professional
caregivers.
The third part explores different models of pediatric palliative care, including inpatient care and how programs designed primarily for adults can be adapted to meet the needs of dying children
and their families.
Essential reading for anyone involved in pediatric palliative care.
Roger Woodruff,
Director of Palliative Care, Austin Health, Melbourne Australia
August 2004
Author Information
Ann Armstrong-Dailey is Founding Director of Children’s Hospice International,
Alexandria, Virginia, USA
Sarah F. Zarbock is a freelance medical writer.
Table of Contents
Introduction
I. Issues in Clinical Management
1. Children's Understanding of Death
2. Pain and Symptom Management
3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Curse or
Challenge?
4. Caring for Children with Life-Limiting Illness and their Families
5. Neonatal Death
6. Care for the Child with HIV Infection and AIDS
II. Support Systems
7. Caring for Bereaved Parents
8. After a Child Dies: Helping the Siblings
9. Spiritual Care of Parents and Children
10. Staff Support
11. Unpaid Staff: The Volunteer Component
12. Lessons in Grief: A Practical Look at School Programs
13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death and Grief
14. The Primary Care Physician's Role
III. Different Contexts, Different Lessons
15. Learning from One Another: Lessons from Pediatrics for Palliative Care
16. Palliative Care in an Inpatient Hospital Setting
17. Ethical Decision Making at the End of Life
18. Incorporating Children in an Adult Hospice Program
19. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidlines and Resources for Adults
Index
