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IAHPC BOOK REVIEW

PALLIATIVE CARE NURSING: Principles and Evidence for Practice

Payne S, Seymour J, Ingleton C (Eds).

Open University Press, 2004
ISBN 0-335-21243-3
791 pp
RRP £29.99, $US 42.95


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This new textbook aims to draw together the principles and evidence that underpin palliative care nursing. It is organized in a novel fashion, following the trajectory of the illness, rather than the traditional physical, psychological, social and spiritual approach. The book is divided into four parts – Encountering illness, Transitions into the terminal phase, Loss and bereavement, and Contemporary issues, the last covering nursing education, research and practice. Each Part is prefaced by an editorial Overview that provides useful orientation, but the twenty pages spent listing what the authors say in the chapters that follow seemed unnecessary.

This book focuses on those facing death and emphasizes the nurses’ role in their care. There are some excellent chapters on access to palliative care, dealing with families, grief and bereavement and other topics. Some other chapters I found a little long-winded. There are also issues where the clinical evidence base has been overlooked. For example, in the two separate discussions on artificial hydration for the dying, the theories are presented but no reference made to the observational studies, never mind the randomized control trial, which suggest it is of no benefit.

The discussion on euthanasia is disappointing. The author describes a “conceptual mist”, which I found to be a blinding smog. [John Keown’s ‘Euthanasia’, recently reviewed here, provides an erudite and crystal-clear description]. There is repeated reference to Kuhse’s work that has been publicly discredited (incidentally, by the authors of two other chapters in this book), and very little discussion of what the Dutch and Oregonians have shown us. Only on page 14, in the final paragraph, is it noted that some Dutch patients were euthanased without request or consent. But as these cases fall outside the Dutch laws, they don’t warrant discussion. And the numbers of patients involved is “marginal”. A thousand patients a year? Please!

My quibbles aside, this is a very impressive book that provides in-depth discussions on a range of issues that are less fully addressed in other palliative care books. It will be of great value to nurses practising palliative care or studying it at a postgraduate level. For me, it was a little too long on theory and short on clinical facts, so it complements but does not replace the “treatment manual” type of book. And we need both.


Roger Woodruff,
Director of Palliative Care, Austin Health, Melbourne, Australia
June 2004

Author Information

Sheila Payne is Professor of Palliative Care at the University of Sheffield, UK

Jane Seymour is Senior Lecturer in the School of Nursing and Midwifery at the University of Sheffield, UK

Christine Ingleton is Senior Leccturer in the School of Nursing and Midwifery at the University of Sheffield, UK

Table of Contents

Introduction

Part 1: Encountering illness

1. Overview
2. History, gender and culture in the rise of palliative care
3. What’s in a name?: a concept analysis of key terms in palliative care nursing
4. User involvement and palliative care: rhetoric or reality?
5. Referral patterns and access into specialist palliative care
6. Acute hospital care
7. Transitions in status from wellness to illness, illness to wellness
8. Communication, the patient and the palliative care team
9. Approaches to assessment in palliative care

Part 2: Transitions into the terminal phase

10. Overview
11. Good for the soul?: the spiritual dimension of hospice and palliative care
12. Working with difficult symptoms
13. Pain: theories, evaluation and management
14. Emotions and cognitions: psychological aspects of care
15. Working with family caregivers in a palliative care setting
16. Supporting families of terminally ill persons
17. Social death: the impact of protracted dying
18. No way in: including the excluded at the end of life
19. Ethical issues at the end of life: a very short introduction
20. The impact of socialization on the dying process
21. Palliative care in institutions

Part 3: Loss and bereavement

22. Overview
23. Nursing care at the time of death
24. Organ and tissue donation: helping patients and families to make choices
25. The care and support of bereaved people
26. Bereavement support: the perspective of community nurses
27. Risk assessment and bereavement services
28. Bereavement support services
29. Families and children facing loss and bereavement: childhood bereavement services

Part 4: Contemporary issues

30. Overview
31. Professional boundaries in palliative care
32. The cost of caring: surviving the culture of niceness, occupational stress and coping
strategies
33. Specialist professional education in palliative care: how did we get here and where
are we going?
34. Information and communication technology in nursing: current role and future scope
35. Research and scholarship in palliative care nursing
36. Developing expert palliative care nursing through research and practice
development
37. Policy, audit, evaluation and clinical governance
38. Leading and managing nurses in a changing environment

Conclusion
Indexes.

 

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